MADDEN-VITALE BILL TO IMPROVE NEWBORN SCREENING ADVANCES

State Seal

TRENTON – Legislation sponsored by Senators Fred H. Madden and Joseph F. Vitale to improve the state’s program for screening newborns for congenital disorders in New Jersey hospitals was approved yesterday by the Senate Health, Human Services and Senior Citizens Committee.

“Newborn screening is essential to protecting the health and wellbeing of infants and detecting disorders that if discovered early in life can be effectively treated or managed to the benefit of the child,” said Senator Madden (D-Gloucester/Camden), vice chair of the committee. “By continuously reviewing and updating this program, we will ensure that it is kept current and that quick and effective health care interventions are provided in the event a condition is detected.”

“New technologies make it possible to screen newborns for a variety of disorders and allow parents and medical professionals to learn of the need for medical treatment early,” said Senator Vitale (D-Middlesex), chair of the Committee. “Reviewing the program annually is critical to ensuring that we remain at the forefront of these advances and to providing improved health prospects for children in New Jersey.”

The Department of Health currently requires that, within 48 hours after birth, all newborns be screened for 54 disorders.  One heel prick of the newborn provides enough blood to test for all 54 disorders. The bill (S461) would require the formal establishment of a “Newborn Screening” program within the Department of Health and require the Health commissioner to establish the Newborn Screening Advisory Review Committee consisting of medical, hospital, and public health professionals, as well as scientific experts and consumer representatives and advocates. The committee would annually review the disorders included in the Newborn Screening program, screening technologies, treatment options, and educational and follow-up procedures. It would also meet annually to review and revise the list of disorders recommended for inclusion in the newborn screening program.

The Newborn Screening program would screen all infants born in the state based on the list of disorders that is recommended by the Newborn Screening Advisory Review Committee and approved by the Commissioner of Health consistent with the Recommended Uniform Screening Panel of the United State Secretary of Health and Human Services. The commissioner would be required to provide a follow-up program to provide timely intervention and, as appropriate, referrals to specialist treatment centers for newborn infants who screen positive for disorders.

The measure would permit parents of newborn infants to opt out of having their child screened if they provide written notice stating that they object to screening on the grounds that it would conflict with their religious tenets or practices. The bill was approved by a vote of 9-0. It next heads to the Senate Budget and Appropriations Committee for consideration.